About the Foundation

Pete DeVitoIn November of 2009, Pete was diagnosed with a respiratory disease, Idiopathic Pulmonary Fibrosis, IPF. That day we learned the severity of this rare disease:

IPF is a condition in which the lung tissue becomes thickened, stiff, and scarred. Once the lung becomes scarred it becomes difficult for oxygen to transfer into the bloodstream and affects the brain and the other major organs as they are not receiving the required amounts of oxygen. Once diagnosed, the median survival rate is 2-3 years, with approximately 40,000 people dying each year, the same number of people that pass away from breast cancer. To date there is no FDA approved treatment or cure.

Pete had such severe IPF when diagnosed that he was immediately put on oxygen 24 hours a day 7 days a week. The days, weeks, and months ahead proved to be challenging to both Pete and his family as each day It was visible that his condition was deteriorating. The only option Pete had left was a double lung transplant. On November 26, 2010, Thanksgiving Day, Pete received his double lung transplant. (This was Pete’s 10th call to the hospital for the transplant- the previous 9 calls the lungs were not viable for transplantation.) Pete was a fighter throughout this entire ordeal and he held on as long as he could. Unfortunately, due to extenuating circumstances, Pete never made it home from the transplant and passed away on December 10, 2010, at the age of 65.

The Pete DeVito Memorial Foundation was established shortly after Pete passed as a way to keep his legacy alive, but to also help raise awareness for this terrifying disease and to help fund research that will lead to a treatment, and hopefully one day a cure, for Idiopathic Pulmonary Fibrosis. If this Foundation can raise awareness in our community and hopefully prevent one less family from going through the struggles Pete and his family did, and we continue to fund research to those institutions working diligently on their research about IPF, it is a great legacy
of Pete DeVito.